We need to talk about how AWESOME Cort Johnson’s Health Rising blog is 🤩 This outstanding blog provides the ME/CFS and Fibromyalgia communities with the best research updates, news, and coping tips about these conditions. ⠀ ⠀ Cort Johnson shines a light of quality information into a dark world. He has tirelessly 😉 served us with his writing for over 15 years. He is just as important as Ron Davis, Jennifer Brea or any other big name in ME/CFS. ⠀ ⠀ Cort Johnson has had ME/CFS and Fibromyalgia for 39 years. Despite his serious symptoms, this badass produces around three informative and useful blogs a week 😲🥳 This is astounding considering his physical limitations! ⠀ ⠀ Cort’s livelihood is provided through running Health Rising, which is a non-profit. He also supports a part-time web designer. He doesn’t make #pwme pay for this information, which is generous to the many of us who can’t. ⠀ ⠀ He is currently running the Health Rising Donation Drive in order to make it feasible to do what he does. You can find a link to this drive in my bio. By offering your support in this drive, you enable him to keep his services free to those who truly, truly need it. ⠀ ⠀ Even a $5 monthly donation would be useful. Or a one time donation is great too. I don’t have much right now, but I have $10. I give because I love the guy and need his vital reporting in order to understand my disease. If you have the money to buy a supplement, please give to this fundraiser. ⠀ ⠀ You can also support him by sharing this post in your story to spread the word about the Health Rising Donation Drive. Please share! Give a like to this post or comment to help it reach as many people as possible. ⠀ ⠀ It’s so vastly important that we as a community give #spooniesupport to each other. We truly need each other and our wisdom to survive. There is no more deserving and essential person in the ME/CFS and Fibromyalgia communities than Cort Johnson. Please give!
start at the root. pour the foundation. master the basics. analyze the structure. shore up the boundaries. // all of this can seem hard but here’s a tip:: + if the doctor says you’re headed for a heart attack if you don’t lower your stress levels NOW, what would you go home and focus on? + diet, exercise, sleep, cutting out the people/activities/habits that increase your stress. right? + you can approach your chronic illness the same way. make a list of ALL the things that bring stress, confusion, discomfort or negative feelings to you. then make a commitment to eliminate one of those items each day. + healing from a #chronicillness is all about lessening your body’s internal stress. if you don’t know where to begin, start with the 6 foundational pillars to recovery:: + sleep diet draining/binding detoxing stress management rewiring your brain + need some clarity? i’m happy to help!
The community (part 2) In my last post, I talked about the communities flaws. Now, I want to talk about the good parts & my favourite parts of the community. 1. One of the biggest things I’m grateful for & the best thing I’ve gotten out of the community is that I’ve met my best friends - my sick bitches. I’m so fucking grateful for those dumbasses, and I don’t know where I’d be without them. 2. You guys. I’ve met so so so many incredible people through this account. You guys have saved me, especially from doing stupid things. All of you have been here for me during the best & worst parts of my life. I’m so thankful for everything this community has given me. 3. The support throughout the community. I love seeing the support everyone gives each other. Yes, it’s not always like that, but it is 95% of the time. I love watching people make beautiful friendships & seeing the support given when someone is struggling. I’m just so thankful for this community. It can really suck sometimes, but I think the good parts most definitely outweigh the bad parts. So, thank you. For everything. - Qotd: what’s your favourite part about the community?
So REST is actually ok???You know, I actually felt guilty for doing absolutely nothing for 3 years but taking care of my health? Even though my body was out of whack and I had a total of 4 surgeries, given birth, and countless minor procedures in that time span I still thought of myself as unproductive. I was so used to going, and going while working a full time job, raising a daughter, and running a business on the side ...that I actually felt guilty for taking care of myself 🤔 Now what kind of sense does that make? It was my therapist who brought my thoughts into perspective after I continued to expressed that I felt like I wasted time. She told me to consider that time rest. Rest? In this fasr paced society where you are called lazy for doing nothing even if it's out of your control? Then I started to get it. My body was run down, my mind was bogged down by the transition from being able bodied to disabled. I NEEDED time to heal and really pay attention to my body. So what I'm saying to all of my #spoonieloves is that it's ok to rest! Don't feel ashamed for taking a long period off if your body needs it! I was on my way to injuring myself even more because I was repeatedly trying to force my body to be on a "normal" schedule when it was PLEADING with me to just rest! It's ok, get your rest on if you need to no matter how long it takes! When you're ready, the world will be right there waiting for you. Have a great day and see you on the other side of healing ❤ . . 📸 my 12 year old daughter Venue: @pictureparkstudio Shirt: @walmart $2.99 Pants: @rainbowshops $5 . . #spoonie#butyoudontlooksick#spinalsurgery#dfwblogger#dallas#dallasblogger#brownskingirl#spoonielife#rest#spoonielife#spooniecommunity#selfcare#selflove#invisibleillness#chronicpain#chronicillness#wellness#vsgcommunity#wls#vsgjourney#4chair#naturalhair#naturalhairstyles#naturalhairjourney
Things get bad for all of us, almost continually, and what we do under the constant stress reveals who and what we are.. ......... Isaiah 43:2 When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. #godspurposeformypain
Why is "how are you feeling?" Or words to that effect such a complicated question! You have to assess the situation to know how to answer. Tbh the question of how I am normally completely throws me 😂 Sometimes I want to say "good" in determination and hope 😂 ... Like obviously it's one thing if it's your partner or it's a 1 to 1 heart to heart then I'd explain a bit more, but also if you're out on trip out then I actually find it all easier to deal with if I don't focus on it all too much so still I'd keep it to a sentence (obviously easy with partner as have a short hand plus he completely gets it) But then you have the family member that doesn't really get it, the old school friend you don't know anymore, the friend of your parents, the person asking to be polite because they know you're ill, the people you don't know just making conversion! It's a complicated question because really the answer is long and winding and I'm not always sure they want a proper answer plus it feels a personal question. Often it's asked in social situations or while doing something else - I can no longer multitask in any way, my brain just can't handle it 😅- so if I'm doing anything I can't really find an answer. (Or any words 😅) I obviously want people to understand but also don't want to have to constantly explain. That's why it's easier sometimes if you just see people as little as possible 😂😅 I've found when I have done a short but full explained answer the person normally looks bit horrified and like I over shared ! Lots of people just want a "I'm fine" but mostly I just sorta get into a "hmm, yea, well, not great" sort of answer. It's crazy how often I get asked if I'm tired, mainly by family members, it's like yes, yes I feel like you've woken me up in the middle of the night and no part of my body has woken up fully.I do know it's hard to understand but at the same time it's often the same people asking and it's been about 3 years now...so yes it's all
Apart from my diary I also have a thing called Positivity Journal. It’s a combination of a gratitude journal, bullet journal, sketchbook and diary 😊 I write there when I’m happy. I highlight the good parts of different days. Sometimes I just write a quote that I read somewhere and like, sometimes I stick tickets from different trips there, sometimes I just simply write what I’m grateful for. I also have pages covered in drawings. My Positivity Journal keeps the good memories 💞 I love it when I’m having a good day - I can write about it there. It also helps me while I’m struggling - I can open a certain page and see the positive moments of my life. It lifts my mood on bad days (at least a little bit 😉), especially when I’m having a CRPS flare. It’s also my place for creativity. I’m sharing the idea of this journal with you - maybe someone will start a Positivity Journal of their own. I listed some pages ideas on the second photo (some are mine, some are inspired by Tiny Little Sunrays), you can use them if you want to start your own journal 📓😉 #positivityjournal#positivity#crps#crpswarrior#rsd#spoonie#spooniecommunity#chronicillness#chronicillnesscommunity#calligraphy