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#chronicillnesswarrior

Posts tagged as #chronicillnesswarrior on Instagram

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2 years ago I posted this photo the day before I took the MCAT. 2 years ago I had so many plan and then I got sick. I remember sitting on the hospital bed getting the news about my kidneys trying to process how I could still do everything. Then slowly realizing a few months later the sicker I got the more I had to get up. Jeez that was the hardest pill to swallow. For someone like myself who always had a 5 year plan and a 10 year plan. To have to stop all that and live day by day was frightening. It took a long time for me to realize that everything that happened and where I currently am is where I need to be to get healthy and build up strength so that I can continue on with new dreams. Once I realized that it really made thing a lot brighter. So if you are not where you want to be ask yourself if it is where you need to be right now to get yourself strong enough so you can continue fighting. Then you can use that strength to continue on with your dreams. They’re not over they are just on hold right now while you heal enough to continue on. . . . . . . . . . . #chronicillness #chronicpain #spoonie #invisibleillness #fibromyalgia #spoonielife #chronicfatigue #autoimmunedisease #anxiety #mentalhealth #ckd #kidneydisease #pain #chronicillnesswarrior #health #endometriosis #endoawareness #butyoudontlooksick #fibro #chronicfatiguesyndrome  #chronicpainwarrior #disability #chronicallyill #endometriosis #babesforendo #endowarrior #endometriosisawareness #endo
I think all of us chronic illness warriors can safely say that we are not living the life we thought we would have. No one in their right mind would choose to have a chronic illness. However, we are all still absolutely smashing life and we should be so proud of ourselves for getting through each day with our new reality ๐Ÿ–ค #chronicpain #chronicpainawareness #chronicpainwarrior #chronicillness #chronicillnesswarrior #invisibleillness #invisibleillnessawareness #brainfog #butyoudontlooksick #multiplesclerosis #multiplesclerosisawareness #transversemyelitis #transversemyelitisawareness #depression #depressionhelp  #depressionawareness #anxietyhelp #anxiety #mentalhealth #mentalhealthmatters #mentalhealthwarrior #mentalhealthsupport #mentalhealthawareness #mentalhealthstigma #exhausted #spoonie #spoonielife #spooniestrong #ibs #endometriosis
those initials right there mean that this girl accessed her own port for the first time this morning, while my nurse just watched. it feels so amazing to be able to care for my own body independently again. you haven’t lived until you’ve stuck a 1” needle into your own chest ๐Ÿ˜ #potssyndrome #chronicillnesswarrior #proudmoment #teammullerrocks
Happy Tuesday ! . Can you relate? It’s ok! Everyone has their time and yours will too โค๏ธ๐Ÿ’ฏ๐Ÿ’ซ Nicole . What is your dream vacation? . .โ €โ €โ €โ €โ €โ €โ €โ €โ € ๐ŸŒŸ WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.๐ŸŒŸ . . . . #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #chronicpainwarrior  #autoimmunewarrior #spoonielife #invisibleillness #lupuswarrior #endometriosisawareness #fibro #eds
I was so glad to be connected to Ashley Weiss through my friend @ronleeeee. Ashley was diagnosed with postural orthostatic tachycardia syndrome, or POTS, a few years ago, and everything in her life changed. She even had to postpone her wedding (though the wedding she and her fiancé ultimately had was a wonderful experience--just different than they had originally imagined) ๐ŸŽ™ On today’s episode, @wellnesswithweiss and I talk about adjusting to life with chronic illness and the grieving process she went through for her old self. We also talk about the realities of living with POTS, and how living with a chronic condition has brought many challenges, but also opened her up to new opportunities ๐ŸŽ™ Tune into the new episode of @madevisiblepodcast to hear our conversation.
When Ashley Weiss was diagnosed with postural orthostatic tachycardia syndrome, or POTS, it changed everything in her life. Not only that, but doctors couldn’t tell her how long her symptoms would last, and there’s no cure for POTS. Like other chronic conditions, there are ways to manage it, but no magic bullet ๐ŸŽ™ On today’s episode, @wellnesswithweiss and I talk about adjusting to life with chronic illness and the grieving process she went through for her old self. We also talk about the realities of living with POTS, and how living with a chronic condition has brought many challenges, but also opened her up to new opportunities ๐ŸŽ™ Click the link in bio to listen to the latest episode of Made Visible, and please remember to subscribe, rate, and review! Every little bit does an enormous amount to support this podcast.
Hello you lovely people! How are you all? ๐ŸŒธ โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ € I’m having a VERY chilled beginning to the week after a busy weekend at my sister-in-law’s hen do. I always find Mondays and Tuesdays are a complete right off for me as I’ve always tried to do too much over the weekend. โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ € Pacing is something that’s really important for someone who has ME but I still haven’t really been able to work it all out yet ๐Ÿ™ˆ I still find it so hard to get the right balance between doing enough stuff with friends to help my anxiety, and not doing to much to make my ME flare up badly. I’ve not quite worked it all out yet but I will get there ๐Ÿ’— โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ € Hope you have all managed to pace yourselves better than I did at the weekend! ๐Ÿ’ƒ๐Ÿป๐Ÿพ๐Ÿฅฐ โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ €โ € —————————————————————— #meawareness #me #myalgicencephalopathy #cfs #chronicfatiguesyndrome #chronicfatigue #chronicillness #chronicillnessawareness #invisibleillness #chronicillnesswarrior #guthealth #gut #chronicgutissues #chronicpain #mecfs #cfsme #healthjourney #spooniecommunity #health #selfcare #selflove #curateyourownfeed #discoverunder1k #discoverunder5k #louisvuitton #qotd #quotes
DAY 7 - YOUR INSPIRATION  This is just so hard to narrow down but I’ll give it a try. I find inspiration and such wisdom from authors and podcasts I’ve found in the last couple of years. I’ve found incredible solace in the words of @gabbybernstein @daniellelaporte @marieforleo @elizabeth_gilbert_writer that although this journey is stressful, the words these women speak is a sort of comfort and friendship in a way.  Everyone gets affected by things in different ways. Finding that person or community that inspires you can be both life changing and a life saver. Find what resonates with you and keep it close. Whether it’s an author who writes words that hit your soul, friends you know truly listen to you, a podcast that gives you useful information; it’s 2019, you can find what helps you, you just have to look.  I’m also incredibly inspired by all the kind soul’s I’ve met through different social media platforms after my illness got worse. I’ve met so many wonderful humans that I’m so grateful to have in my life. Their compassion, support, and kindness are immeasurable and my life is better because of them.  I also can’t understate the true importance of my support circle. Their strength, support, understanding, compassion, and love sustain me and I wouldn’t be here without them. To everyone who has been with me through this journey, you inspire me and I’m forever grateful.  #thankyou #thankful #grateful #chronicillnesschallenge #chronicallyill #chronicillness #chronicillnessdiaries #chronicillnesswarrior #chronicpain #chronicpainwarrior #invisibleillness #hydrocephalus #hydrocephalusawareness #hydrocephalusblogger #hydrocephalusdiaries #hydrocephaluswarrior #hydrowarrior #nervepainwarrior #nervedamagewarrior #neuropathy #spoonie #spooniecommunity #spoonielife #spooniesisterhood #spooniewarrior #lifelessonslaughsessions
HAPPY BIRTHDAY, MIKE! The best bandage changer there ever is, there ever was, and there ever will beโค๏ธI love you to the moon and back foreverโšก๏ธ . . . . . . . . . . . . . . . . . . . .  #hidradenitissuppurativa #hidradenitis #hidradenitissuppurativawarrior #hidradenitissuppurativaawareness #hidradenitissuppurativasupport #hswarrior #hswarriors #hswarriorsunite #hsawareness #likeforlikes #like4likes #autoimmunedisease #autoimmunewarrior #chronicallyill #spoonie #spoonielife #spoonieproblems #spooniestrong #chronicpain #chronicpainwarrior #chronicpainawareness #chronicillness #chronicillnesswarrior #chronicillnessawareness #pcos #pcosawareness #pcosfighter #pcoscysters #invisibleillness #invisibleillnessawareness
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Yep, that’s about right, ‘Apres le bal’. #ramoncasas #anydayoftheweek #addnothingtoit
After morning run cuddles, with my little Squidge.๐Ÿฅฐ I am so amazed that I am able to run at the moment after years of, (often) struggling to walk; it feels incredible! Not only does it make me feel fitter and healthier but it helps my mental health so much. Days are quite tough at the moment as we found out a couple of weeks ago that my mother is ill, which has been terrible but running seems to really clear my head and help me cope. I feel so grateful that  I am able to enjoy this exercise again. โค๏ธ#recovery #running #run #mumsthatrun
Let HOPE Grow!!*** ***AROSEY’S LIGHTHOUSE  #aroseyslighthouse #hope #grow #inspirationalquotes #lifestyleblogger
I like my Tuesdays with a heaping dose of sarcasm. You can thank my chronic pain. โœŒ๐Ÿป
Our position for the foreseeable future! . Last night was a bad night! I was out of bed a grand total of 2 hours yesterday, from 7-9pm. I went back to bed, meditated, put my ear plugs in...very healthy sleep hygiene...but could I get to sleep??? Could I hell!! . Guessing it was around 6ish when I must have finally nodded off ๐Ÿ˜ซ Why does this happen?? Why when we are so fatigued is it that we can't sleep?? It's like pure torture! . So many people think that I must just sleep all day...but it's far from the truth! I may look like I'm sleeping...when in reality I am fully awake...trapped in a prison cell of a body...battling my own thoughts. . I've picked all my skin off around my thumbs. Something that I've always done. My dad and brother both do it and I've always thought it pretty normal...but when you have to put plasters round your fingers and thumbs so you don't pick anymore...think it's far from normal! Rocking the MJ look well today! "heeheee!" . Does anyone else find that when your fatigue is real bad it's harder to get to sleep??? ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ . .
treeoflifeelixirs

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