those initials right there mean that this girl accessed her own port for the first time this morning, while my nurse just watched. it feels so amazing to be able to care for my own body independently again. you haven’t lived until you’ve stuck a 1” needle into your own chest 😏 #potssyndrome#chronicillnesswarrior#proudmoment#teammullerrocks
I was so glad to be connected to Ashley Weiss through my friend @ronleeeee. Ashley was diagnosed with postural orthostatic tachycardia syndrome, or POTS, a few years ago, and everything in her life changed. She even had to postpone her wedding (though the wedding she and her fiancé ultimately had was a wonderful experience--just different than they had originally imagined) 🎙 On today’s episode, @wellnesswithweiss and I talk about adjusting to life with chronic illness and the grieving process she went through for her old self. We also talk about the realities of living with POTS, and how living with a chronic condition has brought many challenges, but also opened her up to new opportunities 🎙 Tune into the new episode of @madevisiblepodcast to hear our conversation.
When Ashley Weiss was diagnosed with postural orthostatic tachycardia syndrome, or POTS, it changed everything in her life. Not only that, but doctors couldn’t tell her how long her symptoms would last, and there’s no cure for POTS. Like other chronic conditions, there are ways to manage it, but no magic bullet 🎙 On today’s episode, @wellnesswithweiss and I talk about adjusting to life with chronic illness and the grieving process she went through for her old self. We also talk about the realities of living with POTS, and how living with a chronic condition has brought many challenges, but also opened her up to new opportunities 🎙 Click the link in bio to listen to the latest episode of Made Visible, and please remember to subscribe, rate, and review! Every little bit does an enormous amount to support this podcast.
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After morning run cuddles, with my little Squidge.🥰 I am so amazed that I am able to run at the moment after years of, (often) struggling to walk; it feels incredible! Not only does it make me feel fitter and healthier but it helps my mental health so much. Days are quite tough at the moment as we found out a couple of weeks ago that my mother is ill, which has been terrible but running seems to really clear my head and help me cope. I feel so grateful that I am able to enjoy this exercise again. ❤️#recovery #running#run#mumsthatrun
Our position for the foreseeable future! . Last night was a bad night! I was out of bed a grand total of 2 hours yesterday, from 7-9pm. I went back to bed, meditated, put my ear plugs in...very healthy sleep hygiene...but could I get to sleep??? Could I hell!! . Guessing it was around 6ish when I must have finally nodded off 😫 Why does this happen?? Why when we are so fatigued is it that we can't sleep?? It's like pure torture! . So many people think that I must just sleep all day...but it's far from the truth! I may look like I'm sleeping...when in reality I am fully awake...trapped in a prison cell of a body...battling my own thoughts. . I've picked all my skin off around my thumbs. Something that I've always done. My dad and brother both do it and I've always thought it pretty normal...but when you have to put plasters round your fingers and thumbs so you don't pick anymore...think it's far from normal! Rocking the MJ look well today! "heeheee!" . Does anyone else find that when your fatigue is real bad it's harder to get to sleep??? 💜💜💜 . .